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Parents' experience of support

Participants: Gunilla Westman Andersson, Carmela Miniscalco & Nanna Gillberg

Background: Early interventions are important for children with autism. Parents of these children often experience challenges in the life situation related to the child’s problems. The aim of this study was to obtain increased knowledge of parents’ experience of support six years after their child was assessed for autism in early preschool years.

Method: A semi-structured questionnaire was sent to all parents whose children (<4 years of age) had been assessed for autism about six years prior. The questions were based on experience of contact and support offered from various actors in society. The open-ended questions were analysed using qualitative method.

Result: The majority had received support but with a variation of the experience of quality. From the qualitative analysis three themes were identified: parental responsibility, resources and competence among actors in society, and inequality. The essence of parent’s comments was the experience of actors in society trying to push the responsibility onto someone else.

Articles:

2017
Andersson, G. W., Miniscalco, C., & Gillberg, N. (2017). A 6-year follow-up of children assessed for suspected autism spectrum disorder: Parents’ experiences of society’s support. Neuropsychiatric disease and treatment, 13, 1783.

 

Page Manager: Anna Spyrou|Last update: 8/21/2019
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